Monday, February 21, 2011

Catching up

Hallucinations continue - they began a different drug, Cyclosporin (Friday AM); stopped the Prograf........I spoke to the doctors today and they've decided that because all the problems he's experiencing (neurological side effects) - they are changing the Cyclosporin and going with Rappamune.  Rappamune does have some serious side effects - not neurological - but blood clots, low white blood cell counts and problems with bone marrow....of course there is a higher chance of cancer developing as well.  The doctor told us it will take a good 36 hours for the Cyclosporin wear off..........I want them to keep him until they can get everything under control.

The doctors ordered physical therapy three times a day (for weakness), they are concerned about his nutrition - tube feeding stopped today and Ron is on clear liquids.

The thoracic surgery department sent a PA to begin the evaluation process (concerning the spot on his lung).  We should see the surgeon tomorrow - I hope they will do a CAT scan on his chest before Ron is discharged from the hospital.

Ron is so out of his head due to the medication, it's impossible to carry on a conversation with him.  He's confused.  It's very frustration and disheartening to see him this way.  Let's give him more time.

My doctor has taken me out of work for severe depression and anxiety - I'm having a difficult time dealing with panic attacks.

1 comment:

  1. keeping both you and Ron in my prayers. sending positive thoughts your way. take time to tend to yourself. easy to say, harder to do.
    keep hanging in there.

    emma
    from HW

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