Well after two ultrasounds, one by the transplant team and the other by his Primary Care Physician (PCP) - Ron does not have a blood clot in his left leg. The swelling has continued for numerous weeks. They did prescribe support hose (I know, it's creates a funny picture in my head).
The transplant team doesn't believe it has anything to do with his transplant; but I have read one of the odd side effects of his anti-rejection drugs is swelling (edema). Since Ron had neurological issues present when placed on both Prograf and Cyclosporine - Rappamune is his only choice. His blood levels are great and we certainly don't want to risk a rejection.
The transplant coordinator, Caroline, suggested Ron may have venous insufficiency; laymens explanation - blood goes through the valves to his foot - the blood gets stuck - and its unable to get back to the heart (the support hose will help with circulation). Of course, I'm worried about a blood clot forming - but was told its not likely to happen. I'm not sure that's enough reassurance for me.
Yesterday morning Ron awoke with 'no voice'; he felt fine, just couldn't talk (raspy). This morning Ron told me he doesn't feel well - so he'll call for an appointment with his PCP. We certainly don't want a simple laryngitis to turn into a visit to the hospital. The anti-rejection drugs suppress the immune system.
If Ron does need antibiotics - the prescription must be cleared by the transplant team.
It's been an amazing journey - we are blessed.
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